One Down—Five to Go

Where do I even start? It has been a little over a week, but it has gone by in a flash getting everything marshalled and ready to dive into the process of killing off the bad cells again. Plus, the added complication with the leg infection. Which might be a good place to start.

The Right Calf

The oncologist put me on an antibiotic to reduce not only the fever, but the swelling, redness, and blistery activity under the surface covering my entire right calf. The fever went away immediately and hasn’t come back, which meant the chemo could proceed on the 7th, barring any return. The infection hasn’t responded quite as well. Though I saw a reduction in coloring and the swelling had subsided a little, and it covered only the lower half of the calf, it was still tender to the touch and hanging about. The odd thing was that, though the redness had significantly decreased, when we arrived at the oncologist’s office prior to chemo start, when she checked it, it was bright red again (still only half). I’m going to figure that since my allergies were on high alert, it was some sort of systemic allergy running through me attacking the weakened areas.

Part of the protocol I’m on is a high dose of steroid, and that is knocking the rest of the infection/inflammation out, so I doubt it will be an issue for long.

The Miracle

While the calf issue may be a bit of a negative (on the run now), it has been offset by something that can only be described as an absolute miracle. In 2021, when I had a similar tumor (the drama queen) near the same place, it reduced quickly once the pre-infusion meds were started (one month prior to infusions starting) and it was gone before I hit the chemo chair. That was unexpected and amazing … BUT THIS is in the miracle category. The day following my visit with the oncologist, where we were all extremely pleased about only ONE tumor to kill, the tumor was SMALLER!!! Every day, it shrunk a bit more. No medication (except an antibiotic for the calf), so my beleaguered immune system gathered the remaining troops and launched an attack. My fighters may be few, but they are MIGHTY.

The tumor didn’t disappear completely, that was a big ask for a week, but it did reduce by over 50%, so my spirits have been soaring. One question that I have been asked is whether we should wait and see what happened with the tumor instead of continuing on with the chemo. The answer is that even if it had reduced to the point of being undetectable, chemo would still need to proceed to ensure ALL rogue cells have been dealt with. In 2021, though the tumor had disappeared using an oral protocol, we still forged ahead with the infusion therapy for the same reason (plus there were more tumors that had to go.) This morning, after the completed first protocol, though still detectable, the tumor is reaching the point where I won’t be able to detect it for much longer. Which pleases me a lot!!!!

The Chemo

I have nothing but praise for the chemo nurse team. They are attentive, caring, work together, and constantly aware, regardless of what else is going on at the time.

It is usual for the first treatment to be broken into two days since they need to test each patient’s ability to withstand the treatment. What that requires is slowing the drip, then speeding it up at intervals and checking for reactions, which adds a lot of time to the process. Since it is a known factor that I DO react to one of the drugs in the protocol, that once again was tested and based on my history, it was decided that ALL future treatments will be given over two days instead of trying to force them into one. While I did quite well with the other drugs they had to test, the initial test may not show the full picture (the one I know I react to I did fine with the testing period the first time, but when they ran it at “normal” speed, I had the reaction.)

One additional factor—my immune system will require boosting since it is already too low, and the protocol I’m on will destroy what little I have left, so next week I go for my first immune system boost, which will then happen every 4 weeks.

The niceties

From experience, I tend to go pack mule on chemo days. I bring my laptop so I can work on something, usually not requiring a great deal of thought because I won’t have it as the brain fog descends, or I can pull up a show or movie for simple entertainment. In CA, they had iPads for recreational purposes, and here they have individual TVs, but I prefer my own. I bring a blanket (two purposes) because as the chemo proceeds, my internal thermostat will go on the blink and I’ll alternate cold and hot, AND it helps to keep the laptop from burning my lap.

In addition to the blanket and laptop, I bring a thermos of tea, a thermos of bone broth, and a bottle of water. The nurses were somewhat scandalized that I hadn’t brought anything to nibble the first day—to me the bone broth filled that niche—so yesterday, I added some cheese and crackers and a hard-boiled egg. I also brought a bolster for under my knees. The recliners are comfortable, except there is a gap where my knees hit and day 1, that was my biggest issue … trying to find the comfort spot. Problem solved. Add to the pack.

Not only do they have blankets for those patient’s who do not bring their own, but they have a row of shelves where they are kept heated, which is a nice touch. A woman in the tech department had to come to the chemo room for some reason a while back, and noticed the heated blankets. Since she crochets blankets and sells them, she periodically crotches a few for the chemo room and the nurses give them to the patients. I was gifted a beautiful blanket of purple and lavender on day 1. I am touched by the thoughtfulness. The chemo room is also stocked with beverages and snacks, should you need them.

Handcrafted by a tech staff member, it works perfectly across the foot of my bed.

How Am I Feeling?

In a word, tired. Which is completely normal. I was tired by the end of day 1, and yesterday, on arriving home, my brain was foggy, and I was exhausted. Again. Normal. Today, I’m doing well. So far not a lot of nausea (though they gave me HIGH doses of anti-nausea during treatment and I have two different kinds of adhoc meds for that at home) I actually was a little hungry last night, so ate some short ribs, I’d prepared in advance. In a little bit, I’ll take a nap, which will be par for the course moving forward. Other than that??? I’m good.

Shopping Spree

One thing that will be different with this protocol vs. the ones endured in the past is that I WILL lose my hair this time. Which isn’t a big deal for me because it will grow back. Probably more unruly than it is now. The biggest question I had was when I should shave my head. The thought of having to clean up clumps of hair as they fall out just doesn’t sit well with me. Besides, it might kill off my robovac and I cannot have that!!!

My hair will thin over the next three weeks, and then fall out completely after the next treatment … so, I’ll make the trip to a local barber the week prior, get the head shaved and the barber cleans up the mess.

I have always joked that I’d buy a rainbow wig if I lost my hair. And truthfully, I would, except it would be itchy on top of my bald head. Instead, I went on a little shopping spree prior to treatment. Retail therapy with a purpose. I bought several types of head wraps in various colors, all soft to the touch, so my head will be covered. I also bought the leak-proof thermoses in the necessary sizes, as well as some V-neck T-Shirts to make accessing the port easier for the nurses (and more comfortable for me since the line won’t be catching on the neckline.) and two pairs of slippers (with soles) to wear for chemo. The biggest key for me is comfortable, stretchy clothing, and even tennis shoes are too constricting.

Chemo Accomplished

This post has probably been much longer than what the norm will be, but I wanted to bring everyone up to speed on what is going on. The situation is MUCH better than it could be, for which I’m eternally thankful. I don’t think the oncologist has quite recovered from her shock over the test results being so much more positive than anticipated. May that carry through … I’m willing to accept any miracles coming my way.

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I have since changed my mind. Keeping the leukemia journey separate from the author journey damaged the message I want to convey. We all face obstacles in life — those pesky things get in the way of us attaining our dreams. I am going after my dreams and goals regardless of the obstacles I face due to illness. The biggest part of those dreams is writing the stories I am gifted with in the hopes that they reach and touch the hearts of others. And maybe by sharing the whole journey, I might inspire others to not give up, but to keep on going until their dreams have been achieved.

Last week, I posted about The Anticipated Decision. My blood values have skyrocketed and we made the chemo decision, but the question remained — which protocol? My doctor wanted some time to think about the best protocol for me, so I waited. When I hadn’t heard by Friday, I called and she asked whether she could call me on Saturday.

Saturday, the call didn’t go exactly as planned. I expected her to call with the name of the protocol. But instead, she was fence sitting. The abnormalities in the leukemia and lymphoma make it aggressive. Add my personal idiosyncracies to the aggressiveness of an otherwise slow-progressing disease, and I’m not the easiest patient.

She laid out a couple of options and told me to think about it and let her know. Cue the deer in the headlights look. It’s not that I cannot make a decision … but this seemed like such a BIG decision to make. And I didn’t know enough.

Thank goodness for the internet age where information is literally at our fingertips. At the end of my research, I had basically joined my doctor on the fence. I knew exactly why she had climbed there.

• It’s not my first chemo rodeo.
• The normally indolent CLL/SLL disease is like a rampaging bull in me.
• I’ve already lived with this for 6 years and I’m still younger than the average onset age.

The question isn’t just which protocol has the best chance, but what is our long-term strategy? After a LONG week of researching and thinking, I had boiled things down to two questions. 1) As one of the options was to resume taking the targeted maintenance therapy, was that postponing the inevitable? 2) If the chemo failed, was the targeted maintenance therapy still viable? The answer to both questions was yes, so decision = made.

I have never been one to shy away from the unpleasant. While I’m not ready to gleefully skip down the street because I will be back in the chemo chair, I am relieved to have a plan. Even though that plan means deliberately making myself sick in order to get better. But that is the trade-off. Six months of getting my cancer cells to commit suicide and six months of recovery, and I might enjoy several years of remission.

And there is the biggest carrot of them all. A chance to get out of the house and meet readers without having to be the masked author. Not having to take extra precautions when around other people to ensure my beleaguered immune system doesn’t give up the ghost. The obstacles I am not allowing to stop me can be removed for a period of time. And I will revel in every minute.

The next step is getting the treatment ordered and approved by insurance, and then I’ll be put on the chemo schedule. And now that the decision has been made, I can get back to what is most important to me … writing and sharing my writing. If you haven’t yet checked out Speak No Evil, I’d love it if you did. It is the best thing I have written to date and I’m so excited about it’s release October 1st.

The post The Treatment Decision appeared first on Be the Cat.

My first acts to accomplish in 2017 is to get my affairs in order. Not because I believe I’m dying or that I won’t recover, but because it needs to be done and has been on my mind for some time and it is time to stop procrastinating. EVERYONE should have their affairs in order. You never know when that bus is going to run you over. Plain and simple. No one is guaranteed any specific time on this Earth. And now that I’ve said that, I have NO intention of going anywhere anytime soon. I have too much to accomplish with my life and I intend to do it.

My doctor was a little down with my results. My lab results are bad. My scan results are bad. But I was ready to dance a jig because the scan results had one result that made me very, very happy. I have been having near constant pain under my left rib cage for a few weeks, and eating certain foods made it extremely painful, which I have been finding out by trial and error. When with the oncologist, we discussed and we both felt it might be an enlargement of the spleen. Which is something you DON’T want. The scan results showed that my spleen was perfectly normal and the area where the pain is coming from is where there are some lymphoma lumps taking up space. We’re getting ready to blast those with chemo, so they will be going bye-bye, and I’ll just have small, soft meals in the meantime. But there was one little problem. I didn’t have the chemo meds yet and didn’t know when they would arrive. My doc got the oncologists office on the line and asked them to find out what was going on as he wanted me on the chemo immediately. There had been a slight mix-up and the meds had not been ordered, but they got it straightened out same day, and I received the shipment yesterday.

The chemo comes from a specialty pharmacy and so far I am incredibly impressed. They provide a mechanism to help you remember whether you have taken your medication or not as well as timer to put on the bottle cap that will alert you that it is time to take your next dose. And for me, this is fabulous. I don’t do pill dispensers well (it is such a hassle to fill them for me), so the little thing to flip it to show that you’ve taken it IS something I can do. Especially as it sticks directly on the bottle itself. And the timer??? Brilliant. Especially when I lose track of time so easily. Then after they arrived, the pharmacist called and went over how I am to take the medication, what to do, what not to do, and to let me know that they had trained staff available via phone 24/7 if I had any questions or couldn’t reach my doctor.

I will shortly be taking my second dose. So far, so good. A brief period of wooziness, but other than that feeling the same. The biggest thing for me to figure out was when to schedule the dose because I have to take on an empty stomach, so nothing 2 hours prior and 1 hour after (except water), and it has to be taken at the same time every day (hence the handy dandy timer). When I saw that it may cause dizziness, I decided to wait until after I had seen the knee doctor yesterday (yes, I managed to get some fluid on my knee that was giving me some trouble), so I felt after dinner would be good. That way, if I’m not feeling well, I can simply go to bed.

The picture at the top of the post fits the mood right now so perfectly. Yes, there is darkness, but the light is shining through. I am filled with hope and am so encouraged to be taking action to beat this cancer back down into submission. I am blessed in my friends and the number of people who care about me, I will never be able to say Thank You enough.

The post And So It Begins … Again appeared first on Be the Cat.

I had an appointment with the oncologist today (in advance of my quarterly appointment) and she agrees that my blood values are rising too quickly for what is normally a slow-progressing disease, and that the nodule, as well as a few others she found during the exam, are lymphoma. So, it is back to chemo. With a twist. There are new treatment protocols and the one she feels is best for me at this time means that I only have to take a pill a day instead of a monthly drug infusion via IV. WHAT A RELIEF!! I will have to go in monthly to have my blood values checked to ensure the treatment is working as it should, but no spending about 20 hours over the course of 3 days with an IV in on a monthly basis.

The picture at the top expresses exactly how I feel at the moment. So peaceful and calm with a lantern lighting my way.

The post The Light Ahead appeared first on Be the Cat.

It has been a month since I posted about no longer being in remission. I have been reminded how blessed I am to have the friends and family I do. I am touched to know how much support I have — though in many ways this is a solitary journey, I do not take it alone. I am reminded of this on a daily basis. At last update, I was told to stay away from sick people, which can be difficult in an office environment. In fact, the Friday following my appointment, I received a timely reminder as to how difficult it really is. I was generally staying in my somewhat isolated workstation area, but went to the kitchen to make a cup of tea when one of the sales reps walked in to get some coffee. We started chatting and during the course of the conversation, she mentioned she had a cold. I would never have known had she not mentioned it. As it was, I backed up, apologized if I seemed rude and told her I couldn’t be around her.

Fortunately, I had already put the steps into motion to get a note from the doctor to allow me to work from home, and that is where I have been ever since — enjoying life as a hermit. The desk pics you see are my new desk/workstation I have finally put together. I had ordered the desk and it arrived on 8/1, but it wasn’t put together until 8/12. Today was a good day because I finally got a chance to use the standing workstation again. I am used to standing in the office and brought the stand and the monitors from work, along with my keyboard and mouse. In these past few weeks I have learned beyond a shadow of a doubt that I require a standing workstation for the sake of my back. With as much desk work as I do, I cannot sit for that many hours without paying a severe price with my back. The first week was okay, the second painful, and last week excruciating. But a good massage over the weekend and working standing up today and I am doing much, much better.

As for my health, I received a call from the oncologist office to tell me to make an appointment with my GP because my thyroid values were out of whack. I called the office and had them call in the prescription for me, one that I had been able to be off for over a year, and made the appointment. The day before my appointment, an eye infection cropped up, and I was glad it decided to show up before rather than after the appointment. I have also been battling a patch of fungal infection on my leg for the better part of the year, and while I get it to a point where it is not bothersome, it continues to come back, so I asked the doc for some more cream to treat it. The surprise was the spot on my finger was a pre-cancer. It cropped up that very day and we froze it off.

So nothing major, just small inconveniences that have to be dealt with right away so they don’t get out of control. Based on my conversation with the doc, it does seem more likely that I will be headed back to chemo in the next couple months. He received the full report from my oncologist and mentioned that she said she’d have to treat me again. They have not asked me to come back in sooner than October, so I would anticipate either late October or early November. Which is kind of what I anticipated anyway.

So … the worst issue so far has been my back, and tiring sooner than I would like. I take naps daily and my back is already TONS better than it was last week, so all in all I’m good.

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EXHAUSTION

By the time I got home yesterday and handled some things for the day job, I had nothing left in the tank. My entire system threatened to revolt if I attempted to get one more thing done, so I did what I should have and went to bed early. But as tired as I was, I still found plenty to be grateful for. The daily ups and downs of life are truly put into perspective when you sit in a room with people who all have the same goal—to keep on living. Yesterday, we were so full in the chemo room, one man had to start his chemo sitting in a regular chair, until one of the other chairs was freed up. And one patient was having chemo in another room because we were so full.

I sat in my chair, thankful exhaustion was the worst of my woes for the day. Others are not so lucky—discussions of hospice and whether continuing chemotherapy will help to prolong life enough or whether it is time to make the patient as comfortable as possible—my heart goes out to those patients and their families for the hard times ahead. And I keep thinking about the guy I sat next to yesterday. He had to use a walker and had a brace on his knee ON TOP of having chemo. I asked him whether he at least had fun banging up his knee. He had been playing basketball when he hurt himself, but if he hadn’t, he wouldn’t know that he has osteosarcoma. Hopefully because he hurt himself, they will have caught it early enough.

Young, fit, your whole life ahead of you, or so you think, until you take a tumble on the basketball court and find out your horizon may not stretch as far as you once thought. Those were the thoughts I saw behind his eyes, as he went through his first chemo session. It’s not what he expected, but it’s something he has to deal with.

We don’t know what tomorrow is going to bring, we don’t know whether the treatment is going to work the way we hope, we can only keep the faith and move forward knowing we’re doing what we can to help our bodies heal. And so for me, I am thankful for exhaustion because things could be worse. I am thankful for my support network. And I’m thankful for the experiences that help me see things from a different perspective.

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After I made the note, I finally drifted off only to be awakened a few hours later by Denny getting out of bed a few times after Phoenix had gone down and scratched at the door to get out. After he put her back in bed the third time, I got up. I know Phoenix—when she gets an idea stuck in her head, she is NOT going to let it rest until she accomplishes whatever mission she is on. When I followed her, she first went over by the dresser and then to the bedroom door, and I realized she was thirsty. When I go to bed early (to read or work from bed), I bring the girls water dish in and set it next to the dresser so they can get a drink if they need one. They need their liquids just as much as we do. And while we didn’t go to be early, she was thirsty. I filled up a glass with water and she slurped away, only to be joined by Elsa as soon as the water was turned on. It had been a warm day.

After we were up at the necessary time, I told Denny she had been thirsty because he slept through the wee hour drink fest. His response? But it wasn’t time for a drink. Like telling that to a dog is going to mean anything at all. Phoenix didn’t care about what time it was … she was thirsty and wanted a drink. End of story.

Another thing that concerned Denny is that I have been snoring during sleep since starting chemo, and he is concerned about what it means and is disturbed because he doesn’t sleep as well. This coming from the man who can wake the dead with his snores. Yes, I am snoring. I have allergic reactions to the chemo drugs, and though we are running the drip at a slower rate so I don’t stop breathing, that doesn’t mean I am free of any reaction whatsoever. It means that the reaction has been reduced to a level that is not life threatening. I am taking my allergy meds—daily, but my sinuses are perennially stuffed, and I snore. This will improve after the chemo stops and I can lose some of the weight I have gained from the chemo, and I’ll no longer be getting the monthly dose of something I’m highly allergic to. I did recommend he go to Walgreen’s and pick up some earplugs.

Sooooo… the actual chemo today. It was delayed. We arrived right on time, and along with the supervising doctor, so all was good … except the delivery of the chemo drugs had been delayed and they didn’t have my cocktail for the day. But it was expected within the hour, so I kicked back and tried to work on some edits. I did accomplish some, but it became clear to me, my level of exhaustion was hindering the process and I wouldn’t be able to focus on the job at hand without at least a power nap. About the time I had this figured out, the cocktail arrived and I was hooked up. I pushed back and took a trip to the land of nod. And like yesterday, didn’t sleep deeply, but at least rested in limbo land and was able to defuzz my brain enough to get some work done. By the time the chemo was finished, so was I. Absolute exhaustion had set in. I didn’t even want anything for lunch. The only thing I wanted to find was my pillow. An hour later, I was ready to start working again. I still have another hour or so of juice left, and then it’ll be (hopefully) time to get a GOOD night’s sleep.

Denny was able to spend the time waiting in the chemo room with me, and I was the only patient through the time I was there. Apparently the only other patients for chemo that day were injection patients. So it was quiet.

Today, I’m just rolling along like the wave in the picture. Wherever the tide takes me.

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On the other hand, I was exhausted. For the first time in any chemo session, I rested for a bit. I was attempting to work on my secret editing project, but knew my brain wasn’t with me, so I kicked back and rested for about an hour… you know the land in between actual wakefulness, and deep sleep where you can hear everything going on around you, but can’t open your eyes??? Yeah, that’s where I was. And after I sat back up and had a little hummus, I was able to focus much more clearly on the task at hand.

We did have a moment this afternoon that caused my chemo nurse some concern—I started coughing. Anyone who knows me well, knows me coughing is not an extraordinary event, but with my white counts being so low, she was concerned I might be coming down with something and wanted to make sure that if it continued after I left, or if my throat became sore, that I would call… regardless of whether the time was midnight or even later. I had been so focused on what I was doing, I hadn’t been paying attention to my surroundings. After all the other patients had left, and Denny had come to pick me up, I let the chemo nurse know what was most likely the cause of my coughing spasm.

One patient I have met before, came into the chemo room with her son to wait for the doctor to be free because she’d had her labs done, but then needed to see the doctor. The son is a heavy smoker, to the point where his pores exude the smell of smoke. Add that together with me being highly allergic to cigarette smoke, and you have a reason for my coughing spasm. I didn’t think about it when I started wheezing. I advise the nurse I was wheezing, took out my inhaler, and took a puff, then continued on with the task at hand. It was only after the chemo nurse questioned me about the coughing that I took stock of my surroundings and realized what was going on.

Funnily enough, they were sitting on the opposite side of the room from me, but that indicates the strength of the reaction. Anyway, the coughing abated after they left, and I’m doing well. Except for now being extremely tired and in search of my pillow.

The picture at the top of the post I thought apt because the mill may be old, but it can still grind exceedingly fine. And I feel a bit like having been run through the mill. Until tomorrow, goodnight.

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We had a little hiccough in getting started with today’s chemo … two hiccoughs. The first bump occurred with my port. When prepping the port for use, the nurse will first draw blood (and put it back in) to make sure there are no clogs or clots happening. One of the nurses is training to work with the ports because not everyone can work with them. She tried and no blood return. She had the line a little too taut, and the teaching nurse showed her how to do it correctly, but still no blood return. So they shot a little heparin in there and gave me a few minutes and voila, blood return. All in all, no big deal. We’ll see how things go tomorrow.

Interestingly, there was another patient who came in after me, and had the same issue with her port. Her daughter was with her and in her concern kept asking more and more questions about the “blockage”. She was worried, but she was also not allowing her mother to relax, so I quipped that it must be the day for it and explained that my port had the same issue. The daughter laughed and was able to relax after that and her mother finally relaxed as well. Maybe the purpose of my port not behaving was so I could provide perspective for another patient and her family. I was fine and laughing about the little problem so they could relax and gain confidence that the chemo would happen … which it did.

The other hiccough? Dr. Doogie was delayed in his arrival. Why does this matter? Because they cannot start chemo, even the pre-chemo cocktail unless a qualified doctor is there to sign off on it. So I had a couple packets of water going through the line, which gave the nurse a chance to ensure the port was working properly, and we got started a little later than anticipated. But all in all, no big deal on either issue.

Denny was my chauffeur for the day, and since I have chemo at the secondary facility on Wednesday’s under the backup doctor’s overview, there are very few other patients, so he came to the chemo room with me and stayed the full time because the other port-problem patient was the ONLY other patient. This has both good points and bad points. The good? Denny has a chance to feel more involved in the process and that he is there for me. He sees what I’m going through and when I’m calm about things like the blood drawback not working, he doesn’t get all het up and have the questions the other patient’s daughter was expressing—which he would have, had he not been present at the time.

The bad? Oy. I take things with me to do during chemo … otherwise I’d be bored silly, since I can’t seem to sleep, which is what most patients do. Today, I was focused on working on my secret project and making some good headway with it. Before starting on the secret project, I did spend the first hour or so chatting with Denny and the nurses. So I didn’t completely neglect him. When I was ready to work, I put in my headphones, announced I was putting in my headphones, and Denny told the nurse what that meant … I was not to be disturbed. Or as he puts it “I can’t talk to her then.” Here’s the problem … it didn’t stop him from flashing magazines at me and sharing car pictures, etc. For me and interruption to the work is an interruption—whether verbal or non. I was good … I didn’t huff or get angry, I just nodded and went back to work. I would have preferred not to have the interruption.

He is my chauffeur tomorrow as well, but there will likely not be any extra chairs, but I also have covered myself by telling him I’ll bring the Kindle so he can read a book he’s been wanting to read for a while. Any little bit helps.

The picture of the dandelion is two-fold for today. I thought the symbolism of the flower sprouting through decaying wood a metaphor for taking the bad port situation and turning it around for the other patient and her family. The other reason the dandelion is significant is that since not being able to have chemo on my appointed week because my liver enzymes were high, I have been drinking dandelion root tea to help my liver function … and (knock on wood) it is working. Since then, my liver levels have been very good. Dandelions and dandelion root tea is beneficial for more than just the liver as well. Shortly after drinking the tea with positive results, I had a discussion on Facebook with several folks about the benefits, and will link to this article on 11 Health Benefits for additional reading if you’re interested. Briefly, the eleven benefits mentioned are:

• Digestive Aid
• Kidney
• Liver
• Antioxidants
• Cancer
• Diabetes
• High Blood Pressure
• Cholesterol
• Gallbladder
• Inflammation
• Immune System

Ultimately, the tea is good for me to help with my digestive system, liver values, cancer, inflammation, and my immune system (and I’m drinking some while writing this post). I actually notice a difference in my body, water retention/inflammation in particular, especially on chemo days, when I forget, or don’t get around to having a cup. It has been added to my daily routine and I think may continue past the chemo life cycle.

And once again, my friends have proved their worth. Last night, after my marathon day of chemo, I was a little more than fuzzy-headed and question whether I should work or watch a movie. In every single response the result was movie. You guys ROCK!!! And Practical Magic was just the ticket for me. Tonight the muzziness is not too bad, but I came home and took a nap after having some lunch. And now… on to the ice cream Denny brought home tonight after picking up my meds for me. (Oh and sorry about the screen shot below, I wanted to embed the FB status, but FB says it no longer exists… funny how I can take a screen shot of something that doesn’t exist, eh?

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I feel like there should be a warning at the beginning of this post …

****WARNING**** Mind explosion in progress.

In a nation focused on the freezing weather, the nice market boost based on the words of new Fed chief, Yellin, and the controversy surrounding whether Blake Griffin actually smacked Justin Bieber in Starbucks, or (more seriously) the death of Shirley Temple Black, my update about how chemo went is small potatoes. But I’m going to give it anyway.

Tuesday’s are my loooooong day, but at least I was able to start my day earlier than normal so we weren’t making our way home at six o’clock. There is just something psychologically daunting about having been sitting in a chair all day and to not be finished by five. Last time I found myself staring at the drip and timing the next one. Not really a healthy mental place to be when I could have been focusing on getting something done. Anyway, starting early helped tremendously because there was still daylight on the drive home. However, first thing sitting in the chair, I was antsy. Could not get comfortable and couldn’t sit still. My fault, entirely. Last night, for some silly reason I can’t even remember, I decided not to use my bed of nails, even though I knew my lower back was having problems. I paid the price for that decision today. Since I couldn’t concentrate on what I had intended to do, I started a movie and things settled down.

Today became a reminder for how truly blessed I am in my journey. I have people who care, people who are willing to drive me to and/or from the treatments, people who are praying for me and my recovery. And I’m blessed in some aspects with my particular diagnosis and resulting treatments because while there have been one or two bumps along the way, my journey so far has been relatively smooth (and I’d really like it to stay that way).

I was reminded about the differences in diagnosis when I learned this morning of a very good friend who went to the ER because of a cough and has been diagnosed with lung cancer. And a reminder from my chemo nurse when she shared that she had to take her father for a lung biopsy tomorrow—and her father is not listening to the doctors, but dismissing them as being over zealous in their testing. And the reminder of how my journey have been relatively good came from a patient who I’d had chemo with before … she arrived to find out she may not be able to have chemo today, but would definitely be checking into the hospital for the next 4-5 days because of some negative test results.

In some ways the reminder of the journey itself hit harder because I watched her face and saw the reaction to learning she had a serious issue going on that had to be dealt with in the immediate future. I remembered my reaction to being told to go home, chemo wasn’t happening that week. How much worse to be told you’d be going directly to the hospital next door? Fortunately, she was able to have chemo prior to going next door to the hospital, but it was definitely a blow to her.

At the end of the day it was me, the other patient, and the chemo nurse chatting. And the other patient said something that made me count another blessing—the worst part of her journey was the exhaustion and she wished she could have my energy. I’ve been tired, I have worked through exhaustion, but I have been fortunate enough to have more energy on a regular basis than most of the chemo patients I’ve come into contact with. Okay, for starters, I really don’t sit still well and never have, so she was seeing me at the end of a day where I’d been in the chair for eight hours already. But the truth is that I have not had many of the exhausted days where the act of opening your eyelids should be greeted with trumpets blaring and confetti falling. I am more tired than normal for me, and my ability to focus on things has been severely depleted (like starting this post thinking I need to make tea, reminded myself 3 times before I realized I had half a cup at my elbow ready to drink—okay, that may just be chemo muzziness settling in). But I also know things could be a LOT worse. I’m thankful they aren’t.

Now I need to grab my HOT tea (finally made a fresh mug) and see what I can get done before getting up and doing the chemo thing all over again. I loved the picture for this post because today I felt a little like a kitten in a pot … not really happy with being confined, but not able to run away either. Besides, the kitten is too stinkin’ cute not to post.

The post Cycle 4, Day 1 – Chemo appeared first on Be the Cat.

Just a quick update… I saw my doctor today to review my blood work, as I do every Monday after chemo treatments, and had a chance to ask her how I was doing overall since we had hit the halfway mark. Are you ready for her response????

We don’t know.

She agreed that it was a good time to make an assessment of progress and was ready to send me for some tests—but then she looked at my chart. Here’s the problem … the tests she thought about running as a gauge to see how the chemo was working didn’t show the evil abnormalities the first time around, so re-running them wouldn’t give us any better idea about how I’m responding to the treatment than I know right now. The test which gave us the information about the abnormalities in the leukemia and the lymphoma was the bone marrow biopsy, and because of the potential for infection, the doctor will not conduct that test again until AFTER I have completed all six treatment cycles.

So it means we’ll have to wait until after my April treatment with probably a little bit of time for me to recover from the treatment itself, then have the biopsy done and wait a week or two for the results. In all likelihood, I won’t know how I’m doing against the cancer in me until the end of May.

Does my body really need to keep everything a secret??? I get the whole mysterious woman thing, but seriously, I’m not supposed to be mysterious to myself.

Other than the whole not really knowing how I’m doing overall against cancer, my blood values are good and the doc is quite pleased with how healthy I look, and how well I’ve been managing the treatments so far. So we’ll just keep moving forward one step at a time.

PS—I did ask the doc about using the port for taking blood, but she prefers not because not everyone knows how to handle the port, and it is more prone to infection than a normal stick for blood. *sigh* It took two tries to get me today… this is becoming a trend.

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This will be a short post. Things went well today. I managed to have my first ever hydration day of less than 4 hours. YAY!!! I arrived early and got started about 15 minutes early, so finished in 3.5 hours. Lovin’ the new port for the speed if nothing else. But also loving that they don’t have to stick me to get the IV in. But the BIGGEST thing about today is I am OFFICIALLY 50% of the way through the treatment cycle.

**Sets off sparkly confetti cannon**

The road ahead is getting shorter and hopefully everything is working as it should with the treatments, and I will have a relatively clean bill of health at the end. It is very mentally and emotionally satisfying to hit the half way mark. I am surviving and doing it quite well, all things considered. Today really was a good day—the treatment was shorter, I got to spend time with my mom, and I took a two-hour nap. AND I managed to get some editing done while sitting in the chair. I feel blessed.

The picture today is a combination of butterflies (I see them as dancing) and a serene fairy because I need the fantasy touch at the moment.

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